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Our Journey

How it All Began

Amatullah’s Wings started off as a simple blog to remind myself and my butterfly of God’s many favours upon us. I wanted her to find something to be grateful for despite her  being diagnosed with a rare and incurable skin disorder called Epidermolysis Bullosa. Over the years, we’ve grown into a home based business passionate about creating EB awareness and helping other families in need.

What We Do

Over the years, we’ve organised a few EB Awareness campaigns to bring light to the difficulties EB families endure, and how to support them.

We’re also passionate about sharing our bereavement journey with others in the hope that it can assist other families suffering the same loss that we have.