This past week has truly been my most harrowing EB week by far. My daughter’s blisters have spread up until just above her lips, resulting in her scabs (and skin) being pulled off with every feed. Add to that the appearance of new blisters and clogged nostrils every so often, I was surely having a …
Dear God I woke up to what felt like a horror movie this morning. My daughter’s face was covered in blood, her eyes shut tight because of it and her nose whistling as the air tried passing through their clogged passageways. I waited an hour before cleaning her face, thinking it better for her to …
She was a mere 14 days old when she went for her biopsy. Being new to anything hospital related, I didn’t know what a biopsy was. So when I enquired about it, doc said that they would just be taking two SMALL samples of her skin for testing in order to more accurately diagnose her condition. …
We needed three people to change her nappy the other night; one to keep her hands from scratching her already blistered body, another to hold her legs , whilst the third did the actual cleaning. Sadly though, we were only two. Every first time mom worries about what life with a baby has in store. …
Epidermolysis Bullosa (EB) is a group of inherited connective tissue diseases that cause blisters in the skin and mucosal membranes. It is a result of a defect in anchoring between the epidermis and dermis, resulting in friction and skin fragility. Its severity ranges from mild to lethal. “Butterfly Children” is a term often used to …
Just a short while ago, I experienced the most ear shattering, heartbreaking ten minutes of my life. My daughter was crying hysterically, and I was the cause of it. It was 11:35 in the evening, and my daughter was having difficulty breathing. Her nostrils were clogged, and I had taken the decision to clear her nasal …
Autism & ADHD is a real phenomenon. Let us be sensitive in our dealings with others.
Dear brothers Did you know that all your wife wants from you is security? She wants to know that you’ll take care of her when the going gets tough. That you’ll look out for her & keep her from harm’s way. It’s why the hero in the movies is portrayed as a muscular guy who …
Dearest husband to be Did you know that every girl dreams of a Prince Charming who will sweep her off her feet, and ride with her into the sunset on a beautiful white stallion, Hijaab flying in the breeze? Did you know that she’d ideally want a beautiful white bridal dress not only for its …
Scrambling for my cellphone, I quickly google the duá we read when entering the graveyard… “Oh Allah! Oh Allah! Please let me find the duá” I whisper fervently as I wait for Shaykh Google to produce the hit I need, whilst frantically searching my subconscious trying to remember the duá we had been taught. …
