Will you remember me my child, when you stand at heavens gates? Will you remember to tell your Lord that you will not enter its gates without me? Will you remember what we look like, your father and I? How will you recognize us after such a long time apart?My child, what’s it like in …
I won’t easily forget the first moments I set sight on my Maryam after she’d drowned. She was semi-white, limp and drenched in water. I remember taking her from my father’s arms, running into the house and trying to do CPR on her. I remember running out of the house with her to the doctor …
Did you know that normal water can burn open wounds? I sure didn’t. And for some time, I couldn’t quite understand why my daughter would insist that the water was burning her body. But it was, and it wasn’t because of the soap/s we were using, though they too played their part. Backtrack about a …
Blood-soaked bedding, this is what we wake up to on the daily. Sometimes it’s more, other times less, but this blood-soaked bedding is only a fraction of the blood my daughter loses daily. Sometimes I wonder “what’s the point of it all?”. Why try to prevent my little girl from scratching during the day when …
Apart from her EB, I’d always thought my little girl to be quite healthy. What! With a healthy appetite and a healing body, why would I think otherwise? Until I heard those five words, that is. I’ve always known I was anaemic, but to hear that my daughter may be too was a bitter pill …
This evening I would like to make a special request; I’d like to ask that you keep my little girl in your prayers. The little fighter that she is, she rarely complains of any pain she may be experiencing. She bites it out and only whines when we’ve touched an open area or accidentally pulled …
I won’t lie – being an EB mom isn’t easy! It isn’t easy to stand by and do nothing whilst my little girl cries because she wants to drink, but her blood clogged nostrils do not allow for drinking and breathing at the same time. It isn’t easy having my little girl scream blue murder …
