This evening I would like to make a special request; I’d like to ask that you keep my little girl in your prayers. The little fighter that she is, she rarely complains of any pain she may be experiencing. She bites it out and only whines when we’ve touched an open area or accidentally pulled …
After what feels like an intense battle of wills and “don’t do that’s” I feel replete as my daughter lay at my side suckling away. There are days, like today, where I feel this EB vibe is just too much for me to handle. Throw in a bit of teething and the fact that my …
Two months have passed by my dear one and I still think of you. I remember those first moments, having just found out that your dad and I were expecting another bundle and your sister another sibling. And though I didn’t ‘feel’ ready for another one, I knew that you were a gift from Allah …
I won’t lie – being an EB mom isn’t easy! It isn’t easy to stand by and do nothing whilst my little girl cries because she wants to drink, but her blood clogged nostrils do not allow for drinking and breathing at the same time. It isn’t easy having my little girl scream blue murder …
