This EB parenting gig is hard. I just finished doing patchwork on wounds where mepitel had come off, or was too wet to leave on. This after bandaging her feet, but not before noticing that her toes were fusing together. And this after she complained that her feet (wounds) were stuck (to the bed/blanket) and …
I’d never been that hurt before, not the day after my c-section, not when I first unknowingly separated my daughter’s skin from her body, nor when I lost my second child via a miscarriage. And though all these incidents were painful in some form or another, nothing compared to the heartbreak I felt at the …
Did you know that normal water can burn open wounds? I sure didn’t. And for some time, I couldn’t quite understand why my daughter would insist that the water was burning her body. But it was, and it wasn’t because of the soap/s we were using, though they too played their part. Backtrack about a …
If I could put all that I feel into words, your heart would not be able to contain all that I have to share. You’ll never know how lucky you are, to be able to see your beloved’s face throughout the day. It’s been just over two years since my daughter’s facial wound appeared, and …
Close your eyes and imagine falling on your knees and scraping it so badly that it opens and bleeds. You try cleaning it but it burns to the touch leaving you in tears every time. You try asking for help, but no-one is able to assist you, because no-one knows what to do with a …
