I miss you Amatullah. I miss everything about you. I miss your laughter, I miss your smiles, I even miss your blood stains. You know how it used to get to me when you are alive. How we ended up with multiple loads of washing because your wounds would weep through your bandages and onto your …
I won’t easily forget the first moments I set sight on my Maryam after she’d drowned. She was semi-white, limp and drenched in water. I remember taking her from my father’s arms, running into the house and trying to do CPR on her. I remember running out of the house with her to the doctor …
Blood-soaked bedding, this is what we wake up to on the daily. Sometimes it’s more, other times less, but this blood-soaked bedding is only a fraction of the blood my daughter loses daily. Sometimes I wonder “what’s the point of it all?”. Why try to prevent my little girl from scratching during the day when …
Apart from her EB, I’d always thought my little girl to be quite healthy. What! With a healthy appetite and a healing body, why would I think otherwise? Until I heard those five words, that is. I’ve always known I was anaemic, but to hear that my daughter may be too was a bitter pill …
This evening I would like to make a special request; I’d like to ask that you keep my little girl in your prayers. The little fighter that she is, she rarely complains of any pain she may be experiencing. She bites it out and only whines when we’ve touched an open area or accidentally pulled …
Two months have passed by my dear one and I still think of you. I remember those first moments, having just found out that your dad and I were expecting another bundle and your sister another sibling. And though I didn’t ‘feel’ ready for another one, I knew that you were a gift from Allah …
I nearly cried the other day. I was almost in tears due to very severe tooth ache. I recall constantly asking God to relieve me of this pain as it was seriously affecting my ability to do anything that day. All this changed when I had to change my little girl’s face bandage. We’ve become …
I won’t lie – being an EB mom isn’t easy! It isn’t easy to stand by and do nothing whilst my little girl cries because she wants to drink, but her blood clogged nostrils do not allow for drinking and breathing at the same time. It isn’t easy having my little girl scream blue murder …
