Looking down at your face as you peacefully sleep in my arms, I cannot help but marvel at the creation of my Rabb. How perfectly He fashioned you my little one. I notice my scarf on your wound, so I gently move it away so that it doesn’t get stuck on you. Too late. Problem-solving brain …
Yesterday, for the first time in months, I didn’t have to bandage my little guy’s torso. The result: I got to touch his back, tummy and chest like regular mommas do. I got to smell his unique baby scent (you know, the one that fades away as they grow older), and I was so glad …
Four Decembers ago, Allah gifted us the opportunity to distribute a few punnets of food in Manenberg. Allah! What a heartbreaking experience that was. Realizing the need, we made the intention of distributing food there monthly in the hope of bringing some relief to the people living there. But I also had a bigger niyyah, …
22 December 2018 Nearly four years ago, our Rabb gifted is with a most beautiful gift, the gift of a little girl whom we named Amatullah. She became the light of our lives, and a constant reminder to us of our Rabb. When Allah returned her beautiful soul to Him two days ago, He took …
30 November 2018 Living with EB can be challenging. I was struggling to keep up with the demands of life and looking after two kids, whilst maintaining my spirituality. It’s not that I didn’t want to, but rather that in the craziness of life, I couldn’t think of what I needed to do. Enter The …
This EB parenting gig is hard. I just finished doing patchwork on wounds where mepitel had come off, or was too wet to leave on. This after bandaging her feet, but not before noticing that her toes were fusing together. And this after she complained that her feet (wounds) were stuck (to the bed/blanket) and …
I’d never been that hurt before, not the day after my c-section, not when I first unknowingly separated my daughter’s skin from her body, nor when I lost my second child via a miscarriage. And though all these incidents were painful in some form or another, nothing compared to the heartbreak I felt at the …
Did you know that normal water can burn open wounds? I sure didn’t. And for some time, I couldn’t quite understand why my daughter would insist that the water was burning her body. But it was, and it wasn’t because of the soap/s we were using, though they too played their part. Backtrack about a …
We ran out of wound care last week. Ran out as in ran out. No Mepilex, No Mepitel, no Urgotul. Nothing. And the hospital didn’t have anything for us either. This past two weeks were intense wound care wise. I was expecting a parcel of wound care to arrive from someone but that didn’t pan …
In light of the fundraiser being organised for my daughter’s wound care needs, we’ve had requests from individuals asking if her photo can be passed around to others in the hopes of raising more awareness and so that people can see where/to whom their money is going. Whilst I understand the reasoning behind this request, …
